At this point I still have joint pain, Raynaud’s phenomenon, and blotchy skin. The joints affected in order of most pain are my toes, feet, ankles, fingers, wrists, knees, and elbows. The joint pain is worse in the morning or after sitting/laying for extended periods. I am currently taking Ibuprofen and Aleve to lessen the pain, but have recently obtained low dose pain meds for the days when I am unable to function normally or when I want to actually do something slightly active.
For those who follow our blog, you are well aware that Aaron and I live very active lives and are constantly working on projects. Not being able to work with my hands like I am used to has been a shock. Even opening jars or carrying objects is difficult. Squeezing out my hair after a shower hurts. Standing on my tip toes is almost impossible and my joints are popping often. It just all hurts.
The Raynaud's phenomenon affects me at night while I am sleeping mostly. The numbness and pain will wake me up a few times during the night. To ease the pain, I have to get up and lay my hands to my side. Almost immediately I can feel the blood rushing back down and the pain slowly goes away. Their are times when it takes up to 30 minutes for the pain to go away enough for me to fall back asleep. Sometimes I swing my arms around and it seems like the movement helps a little when the pain doesn't subside quickly. The last few nights, I have had a lot of pain in my left thumb. Just a dull throbbing pain. Definitely a thumbs down symptom :( I also experience the numbness while I am driving, talking on the phone, and typing but it isn't painful. This might be because I can shake out my hands when I notice it. I have just started taking a calcium channel blocker to help with the Raynaud's symptoms. Hopefully this helps.
I am really really tired of the constant joint pain and would LOVE to get a full night of sleep. It has been almost 4 weeks since my symptoms started and I am wondering how much longer this will last. Even though I don't like jogging, I would love to be able to jog without joint pain. Yes, you heard me right. I would LOVE to go jogging :) There are so many things that I want to do and they just are not the same when it hurts to do them. I am trying to be patient but it is difficult.
One tiny tiny tiny mosquito....